Os sentidos produzidos nos discursos de mães frente ao nascimento de filhos com malformação labiopalatal e os recursos da rede do SUS disponibilizados para o cuidado.

Abstract

Introduction: The cleft lip and palate is the most commom malformations affecting the face and causes aesthetic and functional implications. Before the diagnosis, it is important to consider the conditions of care that parents will be able to have with their baby, especially the mothers, and the necessary referrals for the care. The intervention of SUS health services, from diagnosis, treatment and rehabilitation are fundamental for improving the patient's life quality. Objective: To analyze the senses produced in the mother´s discourses before the birth of children with lip and palate malformation and the resources of the SUS network made available for care. This study originated two articles. Article I "Maternal speeches and paths through SUS: caring for a baby with lip and palate malformation"had the objective of evidencing and analyzing the discourses and pathways performed by the mothers of babies with lip and palate malformation in search of care, support and treatment in the Unified Health System. Sixteen mothers of babies treated at FUNDEF/RS participated in the study. The results suggest the construction and / or strengthening of health care network that can support the elaboration of maternal grief and ensure comprehensive and intersectoral care for mothers and babies. Article II "The symbolic death of the idealized baby: maternal narratives about the malformed baby" with the objective of identifying in the maternal narratives the senses that were produced from the discovery of the baby's lip and palate malformation and its presentation to the family and society. Sixteen mothers of babies treated at FUNDEF/RS participated in the study. The results showed that the mothers experienced processes of intense suffering, mourning and frustration in the encounter with the malformed baby. Faced with the situation, most of them found in the father´s baby, support to mourn, accept the baby and perform the maternal function. Final considerations: Difficulty in knowing the professionals about the flow that the mother should go through during the treatment of the baby is perceived. However, when they find shelter, mothers begin to experience feelings of relief, ease of suffering, acceptance of reality and dedicate themselves to the baby´s care. The implementation of prevention policies and early diagnosis of lip and palate deformities and the problematization of the effectiveness of public health policies directed at mothers, fathers and relatives in the different health units are fundamental strategies to bring the subjects of the caution.