Saúde mental e processo de envelhecimento : cuidando das mães de filhos com autismo.

Abstract

Atypical motherhood presents significant challenges, especially for aging mothers who are solely responsible for caring for children with Autism Spectrum Disorder (ASD). Emotional overload, lack of support networks, and uncertainty about the future directly impact their mental health and quality of life. In this context, this study aimed to understand how caring for an adolescent child with ASD can affect mothers' mental health and aging process. This is a qualitative-intervention research study, based on the phenomenological approach and Minayo’s (2014) content analysis. This research is part of Research Line II — Social Practices, Organizations and Culture (Linha de Pesquisa II — Práticas Sociais, Organizações e Cultura) of the Professional Master’s Program in Psychology (Mestrado Profissional em Psicologia) at UNISC, and is linked to the Study and Research Group on Aging and Citizenship (Grupo de Estudos e Pesquisas em Envelhecimento e Cidadania — GEPEC). The study was conducted between September and November 2024, with nine participating mothers, using sociodemographic questionnaires, semi-structured interviews, and focus groups at the Association of Families and Friends of People with Autism of Porto Alegre (Associação de Familiares e Amigos de Pessoas com Autismo de Porto Alegre — AFAPA). The results indicate that emotional overload, lack of institutional support, and concerns about their children’s future autonomy directly affect these mothers’ aging and mental health. It was observed that the creation of informal support networks throughout the meetings fostered experience-sharing and reduced isolation. As a technical product, the guidebook Caring and Being Cared for: A Guide for Mothers 50+ was developed, focusing on self-care strategies and future planning for their children. It is concluded that atypical motherhood, combined with aging, requires greater attention from the State and society, emphasizing the need for public policies and support networks that promote these women's well-being.